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Ask HN: I've quit six systems for tracking my illness. What works?

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Re: Ask HN: I've quit six systems for tracking my illness. What works?

#91
post #71

I make an app called Reflect [1] which is geared towards tracking these kinds of things. Admittedly, sticking with the habit and forming it in the first place can be hard. If you’re interested in talking about it, let me know! We have a discord that we link to in the app and that’s the fastest way to get a hold of me. [1] https://apps.apple.com/us/app/reflect-track-anything/id64638...

Fun! Ill check it out soon!

Re: Ask HN: I've quit six systems for tracking my illness. What works?

#92
post #15
post #12

Earlier quoted context omitted.

So like a voice capture system, then just feed all that as raw data into an agent?

Suppose you could use voice too, yeah. I built a k8s-based sandbox environment. One pod = one agent, and then a bunch of scaffolding around that to manage it and stuff. "Agent" here is a Claude Code instance within a pod with root access to do whatever it wants inside the pod. The main interface is Discord, but it supports other interfaces/frontends. 1 agent = 1 pod = 1 discord channel, managed by the harness. It can…

discord as an interface is interesting. Any particular reason? (openness or somewhere you already live?)

Re: Ask HN: I've quit six systems for tracking my illness. What works?

#93
post #34

Earlier quoted context omitted.

This is a great idea for a potential startup or, even better, some free software. I started developing something like this but didn't go far.

Yeah, maybe. The issue I foresee is more that the moat is quite small if you can just build it, so the moat would need to exist in stuff that can't just be built and replicated within a few weeks or something. User base maybe, connections to real resources, some other form of deeper value you can't just copy. Not sure though; I'm not a business person

Ya this is basically what Im building. I dont know where the connections to real resources actually live though? Insurance? Lab Results? Wearables? EEG headsets?

Re: Ask HN: I've quit six systems for tracking my illness. What works?

#94
post #17

I don't know anything about tracking your particular illness, but I have tried tracking various things in my life with varying success. Many times I've failed, but then I tried again in different ways. One thing that I noticed is that too often I would try to track too much too rigorously. It would become a burden, I would lose motivation, and I would stop. For some things, I decided to find a way to do the minimum a…

I hear you, ill try this out

Re: Ask HN: I've quit six systems for tracking my illness. What works?

#95
post #74

I find a telegram bot useful, it's just easy to start typing. Then can store right into a Google spreadsheet For instance it can text and have me rate some symptom or can put structured text into a special part of the spreadsheet

Ya, trying that out right now (the product that Im trying to build)

Re: Ask HN: I've quit six systems for tracking my illness. What works?

#96
post #36

My friend paid someone to call her every day and ask her how she's doing, then write the rating in a spreadsheet.

I said this somewhere else in the thread, but it's crazy that this type of service exists ( in a good way obviously). I just never thought you would pay for someone to do this

Re: Ask HN: I've quit six systems for tracking my illness. What works?

#97

For tracking in general you need a system and a medium. The bullet journal method has worked well for me for many years. The systems and structures within the bullet journal change over time, but you can jump back years, and see what you were thinking at the time. More recently I have been using GTD within the bullet journal framework. I highly suggest reading at least those two methods before building your own syste…

Actually I have tried this. GTD with obsidian

Re: Ask HN: I've quit six systems for tracking my illness. What works?

#98
post #26

You can get a guy online to call you every day and yell at you if you didn't do the thing.[0] That's probably what's missing here, some kind of external pressure to do the thing. At least that's what I've found helpful, I couldn't rely on willpower for long term behavior change, so I just change my environment in a way that makes doing the thing become the path of least resistance. Or you could tie it to an existing…

Im shocked that this is a service, thats really interesting. And yes, ive tried logging based on psychological checkpoints, but I found how I really felt is lost by the time I log something at the end of the day.

You can find people who will do it for free, there are forums dedicated to that. (Called accountability partner, accountability buddy, things like that.)

I set up a project with a friend once, where every evening, for several months straight, we sent each other one piece of creative work. (He'd send me a drawing, I'd send him a song.) This was even more interesting because beforehand we'd send each other a prompt for what to make, so it was always a bit of a fun challenge.

But eventually he lost interest, so if it something you intend to do indefinitely, I'd recommend paying someone, instead of relying on them not getting bored / demotivated.

When he lost interest, the way I solved the problem was by just making a rule for myself: I had to do my task every single day, as soon as I woke up.

I structured my environment to make this inevitable, i.e. every night before bed I'd turn off the internet, turn off my phone, and get things ready for the next morning, so that everything would be smooth and "automatic", even if I stumbled out of bed barely sentient.

Kinda like that hack where you put your running shoes next to your bed, so you step on them as soon as you get out of bed. Or putting an important briefcase in front of the door, so you trip over it on the way out. Environmental design!

Re: Ask HN: I've quit six systems for tracking my illness. What works?

#100

What do you need to track? Are you trying to track something like ten different things or just one or two?

It's kind of open ended. Id like to track as many things as possible, so that I can see what instigates a flare, or what leads to my low energy days.

In that case sadly I think it’s just having significant discipline to track the various things. I had to do this for a while because of allergies and it was a lot of effort. However, as someone else has suggested, either getting someone to call you (I basically did this, and it was definitely the easiest way) or maybe you could knock something together with twilio or similar. I considered this, but ultimately didn’t have time so just had someone call me instead.

I also used a lot of the health functions on my iPhone, but those are easy to ignore.

I also used a bunch of smart buttons - so when I drank water I pressed a smart button to log that, I had other smart buttons to log taking specific medications, etc.

The problem is if you’re not motivated to do it (which is often the case if you’re feeling unwell/overwhelmed) then very few systems help.

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