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Ask HN: Have you ever heard of users demonstrating against software?

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Re: Ask HN: Have you ever heard of users demonstrating against software?

#81

Post by alchemist1e9 »

quacked wrote: post #13

Secondary to the question, but I live right by the Epic campus and use the Epic MyChart platform to communicate with the University of Wisconsin health system. It is phenomenal as a patient; I can handle all billing, message any doctor I've seen, view test results as soon as they're uploaded, etc. Recently I saw the results of some bloodwork in the ER before the nurses had time to come and tell me about it. (The UI/U…

Totally agree. Even better is doctors from different providers can likely see your records from each other. It isn’t fool proof but it’s getting pretty good. If a provider doesn’t use Epic then I’ll be looking for a different provider at this point.

Re: Ask HN: Have you ever heard of users demonstrating against software?

#82

Post by an1sotropy »

quacked wrote: post #13

Secondary to the question, but I live right by the Epic campus and use the Epic MyChart platform to communicate with the University of Wisconsin health system. It is phenomenal as a patient; I can handle all billing, message any doctor I've seen, view test results as soon as they're uploaded, etc. Recently I saw the results of some bloodwork in the ER before the nurses had time to come and tell me about it. (The UI/U…

I agree that my healthcare interactions have been improved by Epic. But Epic has no motivation to keep improving, because they control most [1] of the US medical records, and once a hospital is a client, its practically impossible for the hospital to also try a competitor's record management system (medical records are not unique in the enormous cost of switching between systems). So even while we can be glad for mychart we will suffer the increasing downsides of Epic's practical monopoly, without even knowing how much better it could be.

[1] https://www.forbes.com/sites/katiejennings/2021/04/08/billio...

Re: Ask HN: Have you ever heard of users demonstrating against software?

#83

Post by Macha »

armchairhacker wrote: post #70
soared wrote: post #17

Old school RuneScape is an mmorpg where each game update goes to a vote, and if it doesn’t get 75% approval the updates are not worked on by devs and don’t get released. The community feels a strong ownership and connection over the game. So much so that when the development company (Jagex) makes a wrong decision, it’s common for users to “riot” in game. They go to a specific world, at a specific town, place down spe…

Usually I hear bad things about Jagex, I’m surprised they have a system in OSR where they don’t make changes without user approval

OSR exists to to serve their legacy userbase it feels like, who are older and therefore more likely to purchase subscriptions (so they feel it's worthwhile from a business POV) but also more likely to be put off by the level of microtransactions they wanted to put in RS3. So after some very vocal criticism, the "by vote only" system was basically put in because it was the only way what became the OSR community could trust them.

Re: Ask HN: Have you ever heard of users demonstrating against software?

#84

Post by WWLink »

closeparen wrote: post #31
quacked wrote: post #13

Secondary to the question, but I live right by the Epic campus and use the Epic MyChart platform to communicate with the University of Wisconsin health system. It is phenomenal as a patient; I can handle all billing, message any doctor I've seen, view test results as soon as they're uploaded, etc. Recently I saw the results of some bloodwork in the ER before the nurses had time to come and tell me about it. (The UI/U…

>message any doctor I've seen Doctors especially hate this part, since they don't get reimbursed for fielding these messages and (unlike scheduled appointments) there's no limit to how many there can be or how quickly they can come.

I feel like that's something that should really be accommodated for in the billing/insurance model. It kinda is with HMOs and primary doctors, AFAIK they get paid whether you see them or not. Just not in the PPO model.

(I warn, I know nothing about how it actually works!)

Re: Ask HN: Have you ever heard of users demonstrating against software?

#85

Post by wombatpm »

matheusmoreira wrote: post #62
humanistbot wrote: post #45

There was a case more than 20 years ago of a similar revolt against a Canadian hospital's automated drug dispensing machine that would only let nurses withdraw the exact dose of medicine a patient needed in a short window around when patient was supposed to take each dose. It was so bad it got written up into an academic article: https://journals.sagepub.com/doi/abs/10.1177/016224390202700...

> they resented features that controlled their time and their autonomy Of course. Nobody likes being controlled by software. The computer is supposed to obey us, not the other way around. Software controlling humans is a violation of basic human dignity.

Computer says No

Re: Ask HN: Have you ever heard of users demonstrating against software?

#87

Post by analog31 »

closeparen wrote: post #31
quacked wrote: post #13

Secondary to the question, but I live right by the Epic campus and use the Epic MyChart platform to communicate with the University of Wisconsin health system. It is phenomenal as a patient; I can handle all billing, message any doctor I've seen, view test results as soon as they're uploaded, etc. Recently I saw the results of some bloodwork in the ER before the nurses had time to come and tell me about it. (The UI/U…

>message any doctor I've seen Doctors especially hate this part, since they don't get reimbursed for fielding these messages and (unlike scheduled appointments) there's no limit to how many there can be or how quickly they can come.

In every case that I've messaged a doctor through Epic, a nurse replies. I doubt that the doctors are being interrupted at random moments to field these inquiries.

Re: Ask HN: Have you ever heard of users demonstrating against software?

#88

Post by specialist »

A bunch of us were pretty grumpy about Diebold touchscreen voting machines, imprinting our ballots with our voter ids, automatic signature verification, new tabulators.

We activists organized, got press, managed to make election integrity a campaign issue, and nudged some laws and rules towards sanity.

Re: Ask HN: Have you ever heard of users demonstrating against software?

#89

Post by PubliusMI »

electriccatblan wrote: post #60
quacked wrote: post #13

Secondary to the question, but I live right by the Epic campus and use the Epic MyChart platform to communicate with the University of Wisconsin health system. It is phenomenal as a patient; I can handle all billing, message any doctor I've seen, view test results as soon as they're uploaded, etc. Recently I saw the results of some bloodwork in the ER before the nurses had time to come and tell me about it. (The UI/U…

Disclaimer: My Epic experience is around a decade old. I never saw a riot, but I definitely saw providers who hated Epic when it was installed. As in people literally screaming at the top of their lungs at IT nerds. I saw a few contributing factors: 1. Epic supports making all the technically-mandatory-but-not-mandatory-if-you're-in-a-hurry data actually mandatory, so providers have more typing and less ability to ju…

>technically-mandatory-but-not-mandatory-if-you're-in-a-hurry

:/

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