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Ask HN: My son might be blind – how to best support
71–80 of 168 posts
Re: Ask HN: My son might be blind – how to best support
#72> I'm looking for resources, books, websites, etc
Have you tried looking for a blind community or support group in your area? By asking people physically near you who have experience with the matter you should be able to react and understand better than from a static resource and may develop a direct network you can rely on for support and questions.
But to answer your question more directly, “Far From the Tree: Parents, Children and the Search for Identity” by Andrew Solomon is fantastic and has a section on blindness.
Re: Ask HN: My son might be blind – how to best support
#73Normal schools are not appropriately prepared for blind people. They're bullying hells for blind kids (from social exclusion to assault) and the lectures heavily rely on vision, so a blind kid will be left behind even when he makes audio recordings (can't write braille fast enough for useful notes), which some teachers may even take issue with, for extra drama.
And yet, blind kids must learn to integrate into the mainstream world. And schools for the blind are few and far between; at least in the US, they're typically residential (boarding) schools. One option, if it happens to be feasible in the OP's area, might be for the kid to attend a school for the blind early on, then move to a mainstream school later.
Re: Ask HN: My son might be blind – how to best support
#74Congenitally blind person here, here are a few pieces of advice that I think are the most important.
1. Be the polar opposite of a helicopter parent. A lot of blind people end up extremely incapable as adults, because their parents were too afraid to let them learn anything that might have possibly been somewhat dangerous. Sighted kids can recover from this by watching how others do things, or, in the worst case, watching some tutorials on Youtube, we don't have that luxury. Beware of the sighted specialists that encourage these protectionist attitudes, which we unfortunately have plenty of.
This stuff is genuinely hard, my parents actually tried pushing me to learn, but I never really had a motivation to do so, so I mostly didn't, and then had to deal with the consequences later. I figured it out and basically ended up fine, but many in my situation would probably have been stuck at home forever.
If you can find a way to teach your kid good white-cane skills without making them miserable, they'll be grateful to you forever.
2. Most blind people eventually end up unemployed, because there aren't that many blind-friendly jobs to go around. The best chance of getting a well-paying job is being somewhat good at tech, and trust me, blind people need to be a lot better at tech than the sighted to use it effectively. You can't just pick up a smartphone or computer and "wing it", you need to actually learn how a screen reader works. Then there's the inaccessible software to deal with, and to do that, you need to understand all the weird features that your screen reader can offer. It's a good idea for parents to encourage tech use. Mine were extremely hands-off about the internet and what I did on it, and I genuinely believe that it's the single best decision affecting my life that they've ever made.
Keep in mind that, to a blind person, a smartphone is not "just" a smartphone, it's also a way to communicate with other blind people around the country / world (and there are few enough of us that just meeting your friends in-person isn't often an option). Not to mention the apps for reading books (which are important because many books never get released in Braille), detecting colors, describing things, reading text on paper documents / labels, interacting with kitchen appliances that otherwise wouldn't be accessible, checking train/bus schedules that you wouldn't otherwise be able to see and so on. With that said, a phone definitely does not replace a white cane, and probably never will.
3. Avoid blind schools for as long as you possibly can, preferably forever. Go mainstream if you have the option. No idea what country you live in, but the idea applies in most places.
4. Encourage forming friendships with sighted people. Make them aware of the blind community, definitely, but don't let them get stuck there. This is hard, far, far harder than it would be with a sighted kid, but it should be a priority, and you should do everything within your power to make this possible.
Re: Ask HN: My son might be blind – how to best support
#75I am blind, it was degenerative so it sounds different than what your kid has. I have a few pieces of advice. This is more about my own upbringing, so don't take any of it as an accusation towards you. 1) Don't hide things about their condition or prospects. I grew up in a very loving home. However, my parents found out I was going blind when I was ~8, I didn't find out until I was 13. My mother wanted to protect me…
My daughter had a few disabled children in the same group during her kindergarden/school years. No more than one or two at the same time. It was always started with a proper explanation of the handicap and the problems and how to handle the situations. And after that there was just natural playing with eachother in the group. Children are wonderful at learning, accepting and adapting. It just takes a good teacher to lead them on the right path from the start.
Re: Ask HN: My son might be blind – how to best support
#76I just want to second the person who said to reach out to your 0 to 3 program. It's extremely important because your child's blindness might be fixable. I was born blind. But it was because of nerve damage. I don't really understand what all the doctors did, but they managed to restore some sight in one eye by the time I was in 3rd grade or so. Enough to read if the book was close and the text large. By the time I wa…
That is incredible to read. It's one of the things which makes you stop thinking about all the awful things in the world and realise just how incredible modern science and medicine is.
Re: Ask HN: My son might be blind – how to best support
#77I have, I think, no real expert advice to offer you. Except this small anecdote. One of the kids in my 4-year old son's class is blind. I went along for a day to help out on a school trip to some massive playground, which involved loading 60 kids into a bus (they usually walk/bike to school, so not everyone was used to the idea of large buses); keeping track of them in the playground, feeding them, etc etc. Lots of p…
Hijacking this to give advice critical for a baby who is only a few months old. OP, are you in the US? Contact your states "Birth To 3" program immediately. You can get a Vision Specialist to come to your house. I imagine other countries have similar programs. --------- Reading the rest of the thread, you HN'ers are very blessed to be ignorant that such a program exists.
> Reading the rest of the thread, you HN'ers are very blessed to be ignorant that such a program exists.
By this logic pretty much every single person in existence is "blessed to be ignorant" of the thousands (more?) of potential ailments they aren't facing right now. Seems like a silly POV.
Re: Ask HN: My son might be blind – how to best support
#78I have a child that's very disabled in a different way. Take what victories you can and try to practice detachment, because you're not in control and deluding yourself into thinking you are is a road to a whole lot of pain.
Re: Ask HN: My son might be blind – how to best support
#79I am blind, it was degenerative so it sounds different than what your kid has. I have a few pieces of advice. This is more about my own upbringing, so don't take any of it as an accusation towards you. 1) Don't hide things about their condition or prospects. I grew up in a very loving home. However, my parents found out I was going blind when I was ~8, I didn't find out until I was 13. My mother wanted to protect me…
Thank you for sharing. I'm in research that is somewhat attached to the technology side and find 2) particularly interesting.
Did you ever look into electrotactile tongue display units? What is your opinion?
I'm curious about what neuralink will present soon. Musk mentioned "atari graphics" recently, so they probably will for now only focus on generating phosphene-based crude bitmaps in the primary visual cortex (which has been demonstrated to work years ago). I can't know what they are up to and believe / expect they are internally more ambitious about stimulating the higher visual system. But if it boils down to the phosphene bitmaps I expect TDUs (which have FDA approval, already seem to work well and don't require invasive surgery...) to become part of the discussion.
Re: Ask HN: My son might be blind – how to best support
#80Earlier quoted context omitted.
Blind people could benefit of carrying one or several ultrasonic sensor like those used on cars to park. That would emit soft bleeps, faster when something is on the way or closer to an obstacle. Can be built easily with an Arduino I think that another possibility could be to fill your home or workplace with those devices put on walls or furniture. The idea would be that your table could say to you "lookout, I'm here…
Hum, that last idea deserve more time I want to propose this system. Imagine that you are on a workplace where blind people came often to work or as clients. There is a soft, low, slow and sparse music that is pleasing to hear as a background for anybody and is always changing. Now lets imagine that this music is codified and played on a 3D system. Every time we hear a piano note it means "door here", all bass notes…
Systems like that have existed for decades in various versions. The only blind people who use them are people who went blind as an adult - and then often only the investor. People who went blind young have learned to deal with the world and discover technology like that is more annoying than helpful.
Dogs and canes work very well and solve most of the problem. It doesn't really matter if they are walking into a wall, piano or door - they need to know to avoid it. If you want useful sounds require every traffic light to have beeps when it is safe to cross loud enough to be heard across the street - because that is a real problem blind people have in navigating. Most of the rest of the world is forgiving to the types of mistakes blind people make and so they don't really need help.
The other way you can help the blind is just be willing to give directions from the sidewalk in front of a building to the front door.