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Ask HN: Can you share your experience with sleep apnea?

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Re: Ask HN: Can you share your experience with sleep apnea?

#43

My step son was 17 years old, 6'5" and 300 pounds (140kg). He got the sleep apnea face mask CPAP for sleeping, started losing a bit of weight very quickly, got encouraged and revised hs diet and started going to the gym regularly (but not obsessively or anything) and in 9 months was down to just over 200 pounds (95kg). I can't rememeber when he stopped the CPAP, but was no more than 3 months in. He's now 26 years old…

It’s great that your son is feeling better. Unfortunately, weight isn’t always the cause. I’m not overweight but still tried to drop 10 pounds but it made no difference.

Re: Ask HN: Can you share your experience with sleep apnea?

#44

I tried to use a CPAP 15 years ago but it didn't work for me because of the noise and the fact that I had long hair and it felt like i was trapped in it and it was difficult to get it all right so i felt comfortable going to sleep. a few years ago I got another one, and didn't like it at first. Turned out that I needed the mask that covers my nose and mouth because I am a mouth breather. Getting a different mask made…

I noticed that there are some mixed opinions on nasal vs full face mask. According to some doctors nasal masks are better because you need to be breathing thru the nose and push the tongue out.

Re: Ask HN: Can you share your experience with sleep apnea?

#45

I was tired all the time. My sleep got really bad in my late 20s and I ended up getting a sleep study (AHI ~10, no RDI scored) based on recommendations from the HN crowd. My then symptoms were excessive daytime sleepiness and erectile dysfunction. My second sleep physician got me on CPAP (first one wouldn't do anything so I fired him) which helped with the cardiovascular aspect of sleep apnea but didn't do much for s…

It sounds like your first surgery didn’t work. Why do you think the second one will be different?

Re: Ask HN: Can you share your experience with sleep apnea?

#46
post #7

Been a CPAP user for 20 years (am 55 now). Can't sleep without it. It actually fixed my acid reflux symptoms; by not gasping and choking so much to breathe air in, I seemed to stop having reflux. Mine is nonpositional. CPAP pressure is 16 and allows me to sleep on my back, but I'm ususlly a side sleeper. I use nasal pillows after an over-the-nose mask for the first 6 or 7 years. If I lost weight it'd probably help bu…

Do you have any information on what made the second sleep study better then the first one? Could also share who was the second doctor who helped you?

Re: Ask HN: Can you share your experience with sleep apnea?

#47
post #32

https://unreasonablerocket.blogspot.com/2010/11/personal-non...

I’m happy for everyone for whom cpap works so well and so quick. Unfortunately, there is still a lot of people (including me) who don’t benefits from it. I have tried it three times - CPAP, apap and bipap.

Re: Ask HN: Can you share your experience with sleep apnea?

#48

I was tired all the time. My sleep got really bad in my late 20s and I ended up getting a sleep study (AHI ~10, no RDI scored) based on recommendations from the HN crowd. My then symptoms were excessive daytime sleepiness and erectile dysfunction. My second sleep physician got me on CPAP (first one wouldn't do anything so I fired him) which helped with the cardiovascular aspect of sleep apnea but didn't do much for s…

It sounds like your first surgery didn’t work. Why do you think the second one will be different?

The first surgeon was incompetent in hindsight. I had meager advancement from the jaw surgery and the expansion pattern was suboptimal (in addition to various complications).

Re: Ask HN: Can you share your experience with sleep apnea?

#49
I had a bout of apnea, when I was single and did not have a regular sleeptime companion to alert me to it. Tried CPAP - but it is HORRIBLE. Hearing my complaints, the therapist suggested that instead I get a dental appliance - a very simple one - custom-made, but not complex to make.

All it does is jut out your lower jaw a bit, opening up your windpipe (or whatever it is that's getting stopped up). IT WORKED GREAT! To hell with CPAP. And now that I'm married, I have a full-time Apnea Alerter (TM).

Re: Ask HN: Can you share your experience with sleep apnea?

#50
Certainly. I felt the way you describe my whole life until 2016. In 2013 I had a sleep study done. I had what's called central sleep apnea, an issue where the carbon dioxide 'sensor' in my brain stem wasn't functioning properly, so it didn't detect when I needed to breath in again. Not as easy to replace as my car's oxygen sensor unfortunately. I needed a BiPAP, which pushed air in and pulled air out -- first doc put me on a CPAP and it was much worse. BiPAP was not fun but it helped.

I would take the machine to the neurologist monthly or so, he'd read the SD card and show me the results: stopped breathing at least 40-100 times a night.

Fast forward about 3 years, I entered into ketosis -- that's another story, but for now it just means that I stopped eating all carbs, my liver started pulling fat from my diet and fat stores and forming ketones. Muscle would burn the fat, the brain would use the ketones exclusively.

I felt amazing, slept incredibly well, did not nap during the day, was just all manner of incredible things happen from that. Went from 202 to 187 in about 55 days (I wasn't monitoring it, just knew what I'd weighed, and went for a weigh in to get clearance for a gym at work one day and there it was. I was shocked.)

Took the BiPAP machine in about 3 months after going into ketosis: Zero events. I had zero times I stopped breathing at night.

Maybe my cause was different, but I'd bet anyone going into ketosis for a period of months would see healing in the brain that may help this and other issues. I think this because back in the day, epilepsy was treated with a diet that kept patients in ketosis, and after about 6 months, they no longer had epilepsy. Sounds to me like the brain did some repairs it couldn't do when on carbs.

I now think ketosis used to be our natural state before agriculture. Not like there were vending machines with Snickers bars on the savannas we evolved on - high carb diets I don't think existed. Wish I could find the reference, but some research showed that someone on the typical modern diet (high levels of blood glucose) would, when given ketones exogenously (they ate or drank them), have them taken up by the brain immediately -- the brain prefers ketones, even over glucose, the opposite of what we keep being told. Hardly anyone today ever enters ketosis with our diets.

Before doing any further drastic and potentially irreversible things like surgery or drugs, I'd seriously consider trying to get and stay in ketosis for at least 3 months and see how that affects your apnea. It can be a challenge, but not insurmountable. First couple of weeks may be hard, read up on what to do to get through that time, then stick with it for a while.

(EDIT: Forgot to mention, I had GERD too, that's gone. No more acid reflux, even when I eat foods that used to trigger it.)

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