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Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

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Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#361

Post by KomoD »

upghost wrote: post #277
burnte wrote: post #275

Earlier quoted context omitted.

I'm thrilled it works for you and I'm sorry yours is so bad. Mine is average I'd guess, but I actually avoid those apps that generate these sounds because once I listened and heard the REAL silence, I knew if I did it much longer it would drive me bonkers whenever my tinnitus came back. I've had it since early childhood so I think I learned to tolerate it better, I can mostly ignore it these days. So I'd just say to…

Oh yeah, I’d give anything to hear the real silence again. Someone sent this to me as an FDA treatment that’s new, but I haven’t tried it: https://www.lenire.com/what-is-lenire/ I’m hoping for some “silence tourism” once in awhile!

> I’d give anything to hear the real silence again

Same, I was unlucky enough to get it at ~16-17

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#362

Post by upghost »

bloopernova wrote: post #302
upghost wrote: post #271

I hope this comment reaches anyone suffering from tinnitus. My tinnitus is so bad that I’d … well good news is, I found a great way to manage my brain melting tinnitus. Step 1: YouTube-dl this blessed sound: https://youtu.be/8indTo2ykPw?si=izyTOg4gYvnfsqZs (Plz tip the guy) (You should be able to tell just by listening to the sound that it immediately cuts out the tinnitus— if this sound print doesn’t work for you, t…

How loudly are you supposed to listen to that sound? Like, at the threshold of hearing, or blasting it, or something in between? Thank you for sharing it, I am hopeful it helps me :)

Not that loud, actually. With the bone conduction headphones you hear the sound “inside your brain”, which is convenient bc that’s where I hear the tinnitus too. I turn it up a little when I get “flashbangs”, but for the most part the pattern itself just scrubs the noise. I actually don’t even really hear the pattern most of the time unless I stop to think about it.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#363

Post by upghost »

WarOnPrivacy wrote: post #298
upghost wrote: post #277

Earlier quoted context omitted.

Oh yeah, I’d give anything to hear the real silence again. Someone sent this to me as an FDA treatment that’s new, but I haven’t tried it: https://www.lenire.com/what-is-lenire/ I’m hoping for some “silence tourism” once in awhile!

Tinnitus hub gives some reasons to be skeptical. https://www.tinnitushub.com/heres-why-the-jurys-still-out-on... I suspect we don't know the cause of tinnitus in many/most cases - even when we think we do. I think that makes finding cures a lot more difficult.

Yeah. It sounds like I could just lick a 9v battery once in awhile and get most of the “benefits” haha. But hey, I’ll give anything a shot at this point!

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#364

Post by upghost »

Obscurity4340 wrote: post #309
upghost wrote: post #277

Earlier quoted context omitted.

Oh yeah, I’d give anything to hear the real silence again. Someone sent this to me as an FDA treatment that’s new, but I haven’t tried it: https://www.lenire.com/what-is-lenire/ I’m hoping for some “silence tourism” once in awhile!

[flagged]

XD

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#365

Post by upghost »

cryptonector wrote: post #320
upghost wrote: post #271

I hope this comment reaches anyone suffering from tinnitus. My tinnitus is so bad that I’d … well good news is, I found a great way to manage my brain melting tinnitus. Step 1: YouTube-dl this blessed sound: https://youtu.be/8indTo2ykPw?si=izyTOg4gYvnfsqZs (Plz tip the guy) (You should be able to tell just by listening to the sound that it immediately cuts out the tinnitus— if this sound print doesn’t work for you, t…

That's a very pleasant noise. It doesn't make my tinnitus go away though.

I noticed the relief immediately when I heard that noise, so if it doesn’t, might be worth shopping around for a tinnitus scrubber sound that works for you. The gentleman who made that noise in the link I posted makes many others. My tinnitus is in the very high frequency range, above 15.5khz, and I don’t think is tied to any hearing damage— at least as far as the audiologists can tell. If you have a lower frequency ringing you might need something closer to “brown noise”.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#366

Post by chrsmth »

I pretty much got rid of my tinnitus, but my situation won't apply to most people.

So I don't have any permanent hearing loss beyond what's normal. My tinnitus is Somatosensory [1], in my case aggravated by neck and jaw tension. My jaw doesn't align all that well on one side, and I can hear a sharp ring if I move my neck/jaw in the right ways.

I first noticed it after a kayaking trip in which I packed my ear with water so badly that I gave up on getting it out. This went on for months until the conductive hearing loss (i.e. earwax) + neck/jaw tension combined to produce tinnitus. Obviously I didn't know the cause at the time, so it caused me some stress before I started to make progress.

This is just armchair medicine, but my tinnitus seems to be caused by poor signal to noise. If my neck/jaw is tense or misaligned, then the noise floor is raised. I think it's literally my auditory nerve picking up interference from my neck or jar. Similarly, if my hearing is blocked, then the signal is lowered. If the signal to noise is too poor, then my brain stops filtering out the noise, and I hear it as tinnitus.

The solution for me is just a combination of neck stretching, and protecting myself from all hearing loss. I have to monitor this because it will flare up occasionally.

[1] https://www.sciencedirect.com/science/article/pii/S180759322...

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#367

Post by actinium226 »

upghost wrote: post #271

I hope this comment reaches anyone suffering from tinnitus. My tinnitus is so bad that I’d … well good news is, I found a great way to manage my brain melting tinnitus. Step 1: YouTube-dl this blessed sound: https://youtu.be/8indTo2ykPw?si=izyTOg4gYvnfsqZs (Plz tip the guy) (You should be able to tell just by listening to the sound that it immediately cuts out the tinnitus— if this sound print doesn’t work for you, t…

Wow, that's amazing, how have I not stumbled on this sort of thing before?

Like some other commenters I'll probably stay away from it for now since my tinnitus isn't too bad and I think the "just accept it" strategy is right for me, but that's awesome that you've managed to find a solution and work it into your daily life.

How long have you been doing this?

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#368

Post by nurettin »

upghost wrote: post #271

I hope this comment reaches anyone suffering from tinnitus. My tinnitus is so bad that I’d … well good news is, I found a great way to manage my brain melting tinnitus. Step 1: YouTube-dl this blessed sound: https://youtu.be/8indTo2ykPw?si=izyTOg4gYvnfsqZs (Plz tip the guy) (You should be able to tell just by listening to the sound that it immediately cuts out the tinnitus— if this sound print doesn’t work for you, t…

I think I got more tinnitus from this.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#369

Post by upghost »

actinium226 wrote: post #367
upghost wrote: post #271

I hope this comment reaches anyone suffering from tinnitus. My tinnitus is so bad that I’d … well good news is, I found a great way to manage my brain melting tinnitus. Step 1: YouTube-dl this blessed sound: https://youtu.be/8indTo2ykPw?si=izyTOg4gYvnfsqZs (Plz tip the guy) (You should be able to tell just by listening to the sound that it immediately cuts out the tinnitus— if this sound print doesn’t work for you, t…

Wow, that's amazing, how have I not stumbled on this sort of thing before? Like some other commenters I'll probably stay away from it for now since my tinnitus isn't too bad and I think the "just accept it" strategy is right for me, but that's awesome that you've managed to find a solution and work it into your daily life. How long have you been doing this?

It started in April and got progressively worse. By June it got so bad I couldn’t sleep any more and had trouble coding and kinda flirted with a nervous breakdown. Feel really lucky to have stumbled across this little hack.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#370

Post by kbelder »

throwaw1yyy wrote: post #91

Yeah! But I’m gonna say I’m really odd, it’s a lot of vibes and unless I convince a doctor of a case study, I’d never be believed. I have/had Tinnitus (it’s nowhere near as bad as it was 7/10 to it’s current 1/10). It’s been gone 7-8 years now. 1. I listen to music much quieter, and let my ears adjust. 2. This is the weird part. I would get itchy all the time, random pin pricks I’d feel often. I read about monks who…

This reminds me of something I did as a child. I was sitting alone in my parent's car, and a bee stung me.

I started to get upset, then I just mentally recalibrated. The pain was a feeling, a bit of information being transmitted up my nerves to my brain. I just relaxed and listened to the bee sting, not as a pain sensation, but just as a sensation. It turned my mind from going "OW OW OW" to "Oh, that's what venom feels like."

I honestly feel like that completely changed my pain tolerance for the rest of my life.

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