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Ask HN: My 12 year-old nephew just got diagnosed with ADHD, any advice?

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Re: Ask HN: My 12 year-old nephew just got diagnosed with ADHD, any advice?

#31
There’s a lot of good advice here, and everyone I know is different about how to overcome executive functioning issues. But one bit I’ll add:

ADHD can be incredibly lonely. Not even in ways you are aware of until you are older. It’s easy to see the places you aren’t like others or adjusted for in school. There are minor imperceptible ways you might be reminded of this and in all likelihood, those closest to you don’t have it—e.g. teachers, parents. And often it’s framed as something to overcome.

So remind your nephew of what makes him different in amazing ways. And take time to value the things he cares about and excels in. I know that’s good advice for any child, but it’s so important when the world is telling you that you aren’t the same.

Re: Ask HN: My 12 year-old nephew just got diagnosed with ADHD, any advice?

#32
Remember your nephew is still a kid with a brain that is developing for some more years.

Taking medication _now_ may be counter intuitive for future development, as the brain never gets a way to fully (under)regulate/calibrate dopamine release on it's own until maturity.

Finding ways to learn that help him. Ex: - Short attention span? short repetitions of digestible chunks that he can relate to. - After school classes where someone is available for questions and some 1-on-1 help gets a long way.

Re: Ask HN: My 12 year-old nephew just got diagnosed with ADHD, any advice?

#33
Medicate and try not to stop. Don’t avoid it, it’s life changing and the most effective intervention by far. None of the other stuff is nearly as effective. It is very likely turn their life around. As someone who was not medicated in his teenage years (Briefly in childhood and now all through adult hood. But was nissing all through school and it sucked). It’s a real life changer.

Look up Russ Barkley on YouTube. He’s a very well known and respected ADHD researcher and clinician that has some very engaging and informative videos. Here’s a taster: https://youtu.be/_tpB-B8BXk0

Re: Ask HN: My 12 year-old nephew just got diagnosed with ADHD, any advice?

#34
I can't recommend this video enough. I wish this research and understanding was available when I was a kid.

I figured out systems and tools to succeed in school and work (I was largely a C student testing in the top 0.1% of CA school kids on the standardized tests -- found that tidbit cleaning out my mom's things).

It was the rejection I experienced in peer friendships that scarred me deeply, and as someone who has been unmedicated into my 40s, still impacts my adult friendships and professional relationships.

ADHD: Essential Ideas for Parents - Dr. Russell Barkely https://www.youtube.com/watch?v=YSfCdBBqNXY

Some key tidbits to sell you (and your nephew's parents) on spending the full two hours with this:

"... it also helps families to understand some of the other life course risks 50 to 70% of ADHD children are utterly rejected by close friendships by second grade it is in fact one of the more devastating consequences of this disorder is this inability to make and keep close sustained friendships with others their children and it is heartbreaking for parents to see this happening that their child is not as liked as other children that the sleepovers the going to the movies and the other social events in which other children celebrate their peer relationships are shut off for this child why is it there the single best predictor of peer rejection is that symptom the emotional impulsiveness friends forgive you your distractability your forgetfulness your working memory problems and even your restlessness they will not forgive your anger your hostility the quickness with which you emote to other people because it is offensive it is socially costly so now we can begin to understand the numerous social problems that ADHD children are prone to because it arises from this aspect of the inhibitory deficit"

"explains the road rage during driving the job dismissals which are not the result of inattentiveness but of being too quick to anger too quick to express raw emotion in the workplace of which employers are not tolerant especially if it occurs with a customer and it also explains to us the marital difficulties and the parenting difficulties these children may be prone to because the single best predictor of marital problems in the adult with ADHD is not distractability it is emotion so we can begin to paint a better picture of understanding ADHD and its life course risks by understanding the nature of the inhibitory problem..."

Re: Ask HN: My 12 year-old nephew just got diagnosed with ADHD, any advice?

#36
post #33

Medicate and try not to stop. Don’t avoid it, it’s life changing and the most effective intervention by far. None of the other stuff is nearly as effective. It is very likely turn their life around. As someone who was not medicated in his teenage years (Briefly in childhood and now all through adult hood. But was nissing all through school and it sucked). It’s a real life changer. Look up Russ Barkley on YouTube. He’…

Honestly literally anyone’s life is improved by a low dose of speed. And by improved I mean fit into our societies’s version of successful.

Re: Ask HN: My 12 year-old nephew just got diagnosed with ADHD, any advice?

#37

ADD is not a single issue, but a collection of issues with varied symptoms and coping methods, and which he is likely experiencing to different degrees of severity. Thus, in my 20 years of experience coping with it, I've found the concept of ADHD to an unhelpful abstraction. Push past it and learn about all of the individual underlying issues and related concepts (attention and focus, memory (paying special attention…

> you would expect doctors to do this as a matter of course, but in my experience they do not.

My experiences match this as well. After my diagnosis from a dubious battery of psychometrics and interviews from a psychologist, I was expecting the actual psychiatric care to be, I don't know, more scientific?

However, I was met with just simple brute-forcing medications and dosages. No measurements of any kind were ever taken. I'd just get asked questions like, "How do you like ?" or "How is working for you?" Depending on my answers, dosages were either adjusted or some other medication was thrown at the wall to see what would stick.

Asking questions like, "How do I know if is truly working as intended" or "What should I expect to change in my life from taking ?" were questions that I was never received a satisfactory answer.

I quit going to psychs a fews year back and only go to my GP now. Honestly, the care has been substantially better and somewhat more holistic too. I can actually see what good/bad effects medication(s) have on my body (blood pressure, heart rate, etc.), which various psychs, never measured a single time in almost a decade of care.

Re: Ask HN: My 12 year-old nephew just got diagnosed with ADHD, any advice?

#38

Hey there, M33, got diagnosed adult with late 31, so take what I say with a grain of salt. I have immediately had access to both medication as well as ADHD focussed psychotherapy. ADHD is the best treatable neurological condition of all with medication and if you can have access to where you live, it's the first route I'd try to access. Once you have access to meds, nobody can require you to take them as prescribed t…

> For me and others I've met with ADHD, reinforcing strengths through receiving motivating rewards is THE system that works.

Do you have any specific examples of what that could look like? I have tasks I’m motivated to do, but introducing rewards for ones that I’m not motivated for always feels artificial

Re: Ask HN: My 12 year-old nephew just got diagnosed with ADHD, any advice?

#39

Hey there, M33, got diagnosed adult with late 31, so take what I say with a grain of salt. I have immediately had access to both medication as well as ADHD focussed psychotherapy. ADHD is the best treatable neurological condition of all with medication and if you can have access to where you live, it's the first route I'd try to access. Once you have access to meds, nobody can require you to take them as prescribed t…

> ADHD focussed psychotherapy

How does anyone even find this? I find there is a lot of signal vs. noise in this realm of care. What I mean, many professionals list that they treat ADHD, when it's clearly apparent they only list that for marketing purposes. The actual care provided is either antithetical or completely unhelpful -- at least for me.

For example, of the many psychotherapist I have seen, I would often be given advice to make a schedule or a To-Do list, which let's be honest, is common fucking sense, and things I already did/still do.

If I were perhaps struggling to do something, the advice given would be something like, "Well, you just have to get it done." Wow, can't believe one needs a masters degree for that sophisticated level of wisdom. . .

Re: Ask HN: My 12 year-old nephew just got diagnosed with ADHD, any advice?

#40
Advice: Get a second diagnosis, from a medical doctor that has ruled out chronic exposure to toxins/poisoning.

ADHD and other spectrum disorders have in the past been used as a catchall diagnosis for certain groups of symptoms.

For example, heavy metal poisoning often presents as ADHD or ADD misdiagnoses and was not simple to test in years past.

Mercury may leech from silver fillings (depending on where in the world you live), this naturally happens when kids drink soda (which is acidic/caustic for dental amalgams, or may be contaminated through High Fructose Corn Syrup, where mercury is used in its production).

Lead from inhalation may cause similar issues where lead-based paints may shed chips or dust when its deteriorating even when it looks stable.

Arsenic from water as well.

The problem with heavy metals is they don't stay in the blood so a blood test absent a chelator may not properly indicate the issue. These metals get bound up almost immediately in tissue to prevent damage, and you don't know how much gets stored until you take a chelator which may cause acute poisoning (when its bound up, and suddenly gets released into blood).

Eating cilantro (a good chelator) for example has caused migraines and headaches in people who have chronic exposure to such, like mercury. These toxic conditions may also result in poor learning outcomes, brain fog, and other disadvantages that seem to constantly change where finding the words to describe them are quite difficult for the person afflicted.

There are also studies which suggest some of these related symptoms may be linked with high exposure to unsafe levels of PFAS, microplastics, or high levels of flouride.

Its important you first get a proper diagnosis. If you don't bring up the possibility/concern, few doctors will make a connection. Acute poisoning presents very differently from chronic low-level poisoning.

There are some very good medicines that treat the symptoms for ADD/ADHD, but when the cause is toxic exposure; more damage is done by only treating the symptoms.

There are also some significant side-effects related to ADHD treatments, that may be permanent, which may result from those treatments for children who are still developing.

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