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Ask HN: Diagnosed with a incurable chronic disease, should I tell my employer?

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Re: Ask HN: Diagnosed with a incurable chronic disease, should I tell my employer?

#31
You should consult with an employment attorney.

1. If you get fired/laid off and your employer does not know, you might waive any federal protections you deserve by keeping your condition a secret.

2. There might be laws to protect you with your condition as it deteriorates.

3. HR resources might be available to you through the company or its health plans.

It's worth consulting with an expert on the legal status first, then moving from there.

Re: Ask HN: Diagnosed with a incurable chronic disease, should I tell my employer?

#32
post #29

Depending on your disease, you may not have a choice. Take a sick leave and make some pretty thorough plans, get yourself a therapist + possibly a psych, and reconsider what your career path is going to look like. I'm coming at this from the POV of somebody with MS. One thing to do now is pick up some kind of side hustle or project work outside of your main employment - even if it's only ~ 5 hrs a week. This way if y…

Can you expand more on what "explaining that resume gap has been hell" means?

Re: Ask HN: Diagnosed with a incurable chronic disease, should I tell my employer?

#33
Yes, but only partially -- You don't need to disclose details. You should disclose specific limitations while letting them know that those limitations come from a disability, along with what accommodations you need to perform your job.

If you tell them nothing, managing your condition is all on you. If you tell them, they are legally obligated to help you, and you are protected from discrimination.

Could it play against you? Maybe... but it definitely plays against you to deal with such problems alone.

(I should say that I'm speaking about laws in US... that might be a bad assumption. Different locations will have different laws.)

Re: Ask HN: Diagnosed with a incurable chronic disease, should I tell my employer?

#34
post #29

Depending on your disease, you may not have a choice. Take a sick leave and make some pretty thorough plans, get yourself a therapist + possibly a psych, and reconsider what your career path is going to look like. I'm coming at this from the POV of somebody with MS. One thing to do now is pick up some kind of side hustle or project work outside of your main employment - even if it's only ~ 5 hrs a week. This way if y…

Can you expand more on what "explaining that resume gap has been hell" means?

Prospective employers often want to know why there's a gap on your resume. My gap was because at the time I was too sick for a full-time job so I had to rely on Medicaid which meant I couldn't do pretty much any 'real' work at all until my health was straightened out. There's no way to answer without talking about the fact that I'm sick.

Now it's been long enough that most places don't ask but when I did get my health together and looked at getting back into the formal workforce it made it really hard to get a job. "Why haven't you worked since you graduated?" "...weeeell..."

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