Ask HN: How to raise funds for rare disease research?

Post by halukakin » Sun, Feb 13, 2022, 10:58 PM UTC

relaunched wrote: post #211

Please look into cureforviolet.com I'd even reach out to David and talk to him about it. His daughter was diagnosed with GM1. He used his media skills to tell her story, worked with the leading nonprofit in the space, reached out to bio-engineering companies to try to get his daughter into a trial...and they just had a fundraiser in LA. Good luck!