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Ask HN: I'm disabled and out of money. Now what?

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Re: Ask HN: I'm disabled and out of money. Now what?

#141
post #131

I'm not sure what the cause of your chronic pain is, but I would highly recommend reading John Sarno's "The Mindbody Prescription." I've dealt with chronic pain for years and it's the only thing that's had any effect. Please, please , don't write it off until you've read the book. Note that Sarno's work focuses on back pain, but it applies to all types of chronic pain (including migraines, which he discusses in the b…

"The Way Out" by Alan Gordon is a modern treatment of the idea that has been super effective for me. https://www.goodreads.com/book/show/50021854-the-way-out

> Chronic pain is an epidemic. 50 million Americans struggle with back pain, headaches, or some other pain that resists all treatment. Desperate pain sufferers are told again and again that there is no cure for chronic pain.

> Psychotherapist Alan Gordon was in grad school when he started experiencing chronic pain and it completely derailed his life. He saw multiple doctors and received many diagnoses, but none of the medical treatments helped. Frustrated with conventional pain management, he developed Pain Reprocessing Therapy (PRT), a mind-body protocol to eliminate chronic pain. He subsequently founded the Pain Psychology Center in Los Angeles to bring his treatment to other pain sufferers.

> PRT is rooted in neuroscience, which has shown that while chronic pain feels like it's coming from the body, in most cases it's generated by misfiring pain circuits in the brain. PRT is a system of psychological techniques that rewires the brain to break out of the cycle of chronic pain.

> The University of Colorado at Boulder recently conducted a large randomized controlled study on PRT, and the results are remarkable. By the end of the study, the majority of patients were pain-free or nearly pain-free. What's more, these dramatic changes held up over time. The Way Out brings PRT to readers. It combines accessible science with a concrete, step-by-step plan to teach sufferers how to heal their own chronic pain.

Re: Ask HN: I'm disabled and out of money. Now what?

#142
post #61

Earlier quoted context omitted.

This advice is not particularly effective. Getting hired into a backend firm is tough as all of them want the same things, if you don’t have those things - then getting a company to “yes” is hard. People watch tv and play video games because they do not have a high mental demand. If you are on pain medication, or going without - your “free” mental cycles may be non existent

When I was burned out I got hired into a large bank (think Citi, Credit Suisse, maybe not necessarily Goldman Sachs which has high standards). They have huge amount of backend. Super slow development filled with people who do not have large ambitions and only express them so that they are not labeled as waste. My principal developer was a woman from India who could not write a loop. She worked there for 6 years. Dead…

> As to playing video games -- yes, they have high mental demand. The only difference between solving problems while playing the game and solving problems in IDE is your will power.

This isn't really true.

Disregarding the fact that the mental demands of software engineering work and games can be of different kinds, there is also absolutely a difference in volition.

Games are played voluntarily, and there's generally no external pressure (at least in single player games). Facing demands at work -- or even having the obligation to show up -- is not voluntary. You can also switch games at will. You can stop playing at will. Most people can't do those at work, at least not to the extent that one would actually feel free to do so.

Whether you've got a sense of control and are doing things voluntarily, or whether you're doing the same things because you are or feel forced or obliged to, can AFAIK show up as actual differences in your neural activity (with stress-related areas being more active in the latter case).

Anecdotally, and based on personal experience, burnout can also seriously turn things you used to enjoy into something that triggers immediate anxiety and (malignant) stress. That might be similar to the difference in volition if an activity that used to be within your control and more or less your own choice turns into a malignant stress-inducing forced one. At least it certainly doesn't help if you're both feeling forced to do something you don't feel is within your control and getting a massive stress spike out of even thinking about it.

If you want to twist that, you could still technically say it's in your head, but it can be an actual physical difference.

You're not wrong about all the things you're saying. Finding a place with lower actual demands, and settling with that at least for the time being, might actually be a good idea for OP. It's quite possible that OP might have a much greater chance at landing such a job than it feels right now. It's quite possible that some things actually aren't as bad as they feel to them right now.

But saying someone is capable of doing a mentally (and, in burnout, probably emotionally) taxing thing A because they're capable of doing thing B that may or may not also be mentally taxing in a similar or different way isn't quite right.

And pinning things onto the will power of a burned out person can be outright dangerous.

I have no reason to doubt your personal experiences, but other people's experiences with burnout can be rather different from yours.

Re: Ask HN: I'm disabled and out of money. Now what?

#143
post #60

I'm 39 and disabled in addition to being politically exposed (that is, a bunch of people whom I've never met know me by my real name and, for reasons so silly it is not worth getting into, utterly hate me) so I have some insight into your situation. To start: this utterly sucks. If it makes you feel better, it's not as uncommon as people want to believe. It awaits probably half of the people here in middle age (meani…

I was going to mention government jobs as well. I'm not sure how good the US/state governments are with this, but in Canada the feds are extremely accommodating for any mental and physical illnesses.

Re: Ask HN: I'm disabled and out of money. Now what?

#145

I'm not sure what the cause of your chronic pain is, but I would highly recommend reading John Sarno's "The Mindbody Prescription." I've dealt with chronic pain for years and it's the only thing that's had any effect. Please, please , don't write it off until you've read the book. Note that Sarno's work focuses on back pain, but it applies to all types of chronic pain (including migraines, which he discusses in the b…

I've suffered from severe chronic back pain for the past 12 years or so, starting at the age of 16. It manifested as sciatica initially, and gradually became more severe. I had flare ups that would last months. It eventually started manifesting as SI joint pain, constantly switching sides.

Over the years I had been to 4 different physiotherapists, tried everything from regular core exercises formulated by Stuart McGill, to Infrared heat bands, climbing alot. It would always come back.

I picked up Sarno's book about 6 months ago and I approached it with a highly skeptical eye. My back pain is nearly completely gone. I have had very minor flare ups that last a day or two, but I just repeat a few mantras and it disappears the next day (whereas before the same kind of flare up would last for months).

I even had MRIs done at the start of the pain, I had multiple bulging disks and even a spine that appeared too straight. For anyone reading, don't let this discourage you. 50% of people who have had bulging disks appear in an MRI don't experience any pain at all!

Sarno's book has some pretty flaky theories behind how the pain manifests and the physiology of it all, but the overaching theme is that repressed anger / anxiety can manifest as severe back pain. Once you recognise this you can lose the pain. I never thought I would fix my back pain, but now I have.

Read the book if you're suffering!

Re: Ask HN: I'm disabled and out of money. Now what?

#146

You don't spend money on rent, but are still spending $1500/month? On what?

I'm guessing food, car payment, gas, insurance, it adds up. Also, your comment comes across as really inappropriate.

How is my question inappropriate?

In any case, selling his/her car seems like an easy way to cut costs.

However it sounds like medical costs are the culprit, which was the intention of my question.

Re: Ask HN: I'm disabled and out of money. Now what?

#147
Get rid of your car. If you aren't working then you don't need it. The cost of registration, gas, insurance, maintenance, and the payments are things that you don't need. Use public transportation or Uber/Lyft. Your costs will be far less than now. SSDI became much easier to get a little over 10 years ago. You should be approved if you are unable to work and need financial support. Have you tried pain management? I have some experience with chronic pain, but I am still working thanks to some really great pain management doctors.

Re: Ask HN: I'm disabled and out of money. Now what?

#148
Radical idea: try a long meditation retreat. Some of them are free or by donation (e.g dhamma.org, a little cult-like but I think well-intentioned). It also forces a rigorous routine on you for a short while, which can help a lot with the aimless feeling. The challenge of getting through the full ten days gives you some purpose.

It helped a lot with my depression, and some people have found serious benefits with chronic pain. It seems to help people disconnect from the physical pain and not have it affect other aspects of their life as much.

If that doesn’t appeal to you, look for other changes that can enforce some routine in your life. Taking in-person classes at a college, joining a yoga class, meeting a friend for coffee every morning, volunteering at a shelter, cooking breakfast for your family every day… something that turns your focus towards others a little can be helpful.

Re: Ask HN: I'm disabled and out of money. Now what?

#149
post #2

This chronic pain - what is the cause of it? Are you diagnosed with fibromyalgia?

Fibromyalgia and CFS have been tossed around but never officially diagnosed. The practical experience that I have is frequent exhaustion from things that should be easy, difficulty focusing, flu-like aches and tons of migraines.

I had similar except the migraines, from gallstones and cervical spine misalignment. I suffered for over a decade, but never gave up hope. Once the obvious pain showed up in the gallbladder and I found a good chiropractor, my issues are almost completely gone.

All I can say is focus on fixing the problem. Do whatever you need to do to diagnose yourself, heal yourself, and focus. Going to work through the pain an fatigue was tolerable only because it kept me able to pay the chiro/surgery bills.

Self diagnosis comes through process of elimination sometimes. Try eliminating or adding different things from/to your diet for a month, one at a time.

Re: Ask HN: I'm disabled and out of money. Now what?

#150

I'm not sure what the cause of your chronic pain is, but I would highly recommend reading John Sarno's "The Mindbody Prescription." I've dealt with chronic pain for years and it's the only thing that's had any effect. Please, please , don't write it off until you've read the book. Note that Sarno's work focuses on back pain, but it applies to all types of chronic pain (including migraines, which he discusses in the b…

Q: My life is falling apart on all fronts and I'm struggling with physical and mental health issues; what should I do?

A: Read this book.

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