Live data from Hacker News

Ask HN: My son might be blind – how to best support

news.ycombinator.com

101–110 of 168 posts

Re: Ask HN: My son might be blind – how to best support

#101

Earlier quoted context omitted.

Coping is quite literally necessary. It’s the same for people with cognitive or psychological disabilities. The world isn’t organized or structured with you in mind… You need to cope with the immediate challenges and find solutions, and often you need to cope with the psycho-emotional aspect of living in a world that often works against rather than with you. It’s difficult. Not coping is a recipe for a really bad tim…

I’m comfortable with it but most members of the various disability communities would not like me since, among other things, I strongly advocate for pre natal testing and elective abortion of people with serious issues like blindness. I think that being blind makes life not worth living. I’m extremely supportive of MAID and physician assisted suicidal for these exact reasons. “Coping” by telling those who don’t want t…

> I think that being blind makes life not worth living.

Good thing you have no idea what you're talking about.

Re: Ask HN: My son might be blind – how to best support

#102

Congenitally blind person here, here are a few pieces of advice that I think are the most important. 1. Be the polar opposite of a helicopter parent. A lot of blind people end up extremely incapable as adults, because their parents were too afraid to let them learn anything that might have possibly been somewhat dangerous. Sighted kids can recover from this by watching how others do things, or, in the worst case, wat…

This is a great post. Thank you to share. First hand experiences like this are one of the best parts of HN.

This part:

    > If you can find a way to teach your kid good white-cane skills without making them miserable, they'll be grateful to you forever.
Can you go a little deeper on this one? What are some good ways vs bad ways to teach white-cane skills?

Last: A question for myself. Sometimes, when I ride the subway, I see a blind person trying to navigate the station, platform, and train doors. Usually, I hang back a few meters to make sure they are OK. If something goes wrong -- they are a bit misoriented, what is an polite way to break the ice and offer help? (Ignore any language barriers.) I would like to hear what works well for you.

Re: Ask HN: My son might be blind – how to best support

#103

I have, I think, no real expert advice to offer you. Except this small anecdote. One of the kids in my 4-year old son's class is blind. I went along for a day to help out on a school trip to some massive playground, which involved loading 60 kids into a bus (they usually walk/bike to school, so not everyone was used to the idea of large buses); keeping track of them in the playground, feeding them, etc etc. Lots of p…

It's interesting how kids can adapt so naturally. We've got so many preconceived ideas about difficulties.

When I was young there was a deaf kid in our school. We just figured out communication as needed. Kids don't overthink things like adults do. The environment matters, but sometimes we should just let kids figure it out.

Re: Ask HN: My son might be blind – how to best support

#104
post #67

There are whole communities with lots of great info. Two that I know of personally (for older kids): Perkins School for the Blind https://www.perkins.org/ Texas School for the Blind and Visually Impared https://www.tsbvi.edu/ There might be a school closer to you. I would not hesitate to reach out to them… They’ll point you to other groups in your community.

North Carolina has a school for the blind that was established back in mid 1800's. I believe they support all ages - https://www.governormorehead.net/

Re: Ask HN: My son might be blind – how to best support

#105

I have, I think, no real expert advice to offer you. Except this small anecdote. One of the kids in my 4-year old son's class is blind. I went along for a day to help out on a school trip to some massive playground, which involved loading 60 kids into a bus (they usually walk/bike to school, so not everyone was used to the idea of large buses); keeping track of them in the playground, feeding them, etc etc. Lots of p…

It's interesting how kids can adapt so naturally. We've got so many preconceived ideas about difficulties. When I was young there was a deaf kid in our school. We just figured out communication as needed. Kids don't overthink things like adults do. The environment matters, but sometimes we should just let kids figure it out.

>We've got so many preconceived ideas

they're not preconceived, you didn't have them when you were a child. I think this points to the benefits to their own development (and then to the rest of us) that abled children get from disabilities being mainstreamed as much as is practical.

Re: Ask HN: My son might be blind – how to best support

#106
I love how blind people are replying here. Had the privilege to interview a programmer who was blind once. It floored me how well this guy could work. The speed, the ability to hold code in his mind that had only been read once to him was astounding. He got bested by someone with more specific domain experience and I still regret not being able to work with him.

Re: Ask HN: My son might be blind – how to best support

#107

Earlier quoted context omitted.

And yet, blind kids must learn to integrate into the mainstream world. And schools for the blind are few and far between; at least in the US, they're typically residential (boarding) schools. One option, if it happens to be feasible in the OP's area, might be for the kid to attend a school for the blind early on, then move to a mainstream school later.

If blind communities are like some deaf communities, they may have a strong separatist bent which does indeed allow their child to avoid integrating with the rest of the world if they so choose. This is an option.

The blind communities I'm involved in don't have any such separatist bent that I'm aware of. If anything, perhaps we go too far in insisting on assimilating into the mainstream.

Re: Ask HN: My son might be blind – how to best support

#108

I am blind, it was degenerative so it sounds different than what your kid has. I have a few pieces of advice. This is more about my own upbringing, so don't take any of it as an accusation towards you. 1) Don't hide things about their condition or prospects. I grew up in a very loving home. However, my parents found out I was going blind when I was ~8, I didn't find out until I was 13. My mother wanted to protect me…

Thank you for sharing. I'm in research that is somewhat attached to the technology side and find 2) particularly interesting. Did you ever look into electrotactile tongue display units? What is your opinion? I'm curious about what neuralink will present soon. Musk mentioned "atari graphics" recently, so they probably will for now only focus on generating phosphene-based crude bitmaps in the primary visual cortex (whi…

I guess that might depend on how much you trust Musk.

Re: Ask HN: My son might be blind – how to best support

#109
post #75

Earlier quoted context omitted.

My daughter had a few disabled children in the same group during her kindergarden/school years. No more than one or two at the same time. It was always started with a proper explanation of the handicap and the problems and how to handle the situations. And after that there was just natural playing with eachother in the group. Children are wonderful at learning, accepting and adapting. It just takes a good teacher to…

I see the necessity good intentions behind it, but also believe this singling out can lead to developing this sense of shame the user mentioned.

Everything has failure modes. The idea, I think, is to get it out in the open up front, after which it is just the new normal that everyone accepts, rather than drag out discovering implications of the difference again and again as they uncover them.

Re: Ask HN: My son might be blind – how to best support

#110
post #67

There are whole communities with lots of great info. Two that I know of personally (for older kids): Perkins School for the Blind https://www.perkins.org/ Texas School for the Blind and Visually Impared https://www.tsbvi.edu/ There might be a school closer to you. I would not hesitate to reach out to them… They’ll point you to other groups in your community.

North Carolina has a school for the blind that was established back in mid 1800's. I believe they support all ages - https://www.governormorehead.net/

> … they support all ages…

I was unclear: The OP mentions an infant, and schools are for older-than-an-infant aged children. Schools will still be able to direct the OP to other groups and resources though.

Post reply on HN