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Ask HN: Can you share your experience with sleep apnea?

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Re: Ask HN: Can you share your experience with sleep apnea?

#11
One thing that might help with the monitoring aspect is the dreem headband at https://dreem.com/

This might give you nightly data on which you can experiment continuously

It measures your sleep via reusable eeg electrodes on a device thats connected to an app

I got it a couple years ago I think for 600 USD. I think now it may be geared towards clinical trials though, at least in the USA, so you may have to contact them about it

There also is (was?) a feature on it where pulses of pink noise were played in sync with deepest NREM brain waves to enhance that aspect sleep... but last I checked you had to purchase it while in the EU or something (i.e. not USA)

Re: Ask HN: Can you share your experience with sleep apnea?

#13
I have sleep apnea, probably caused by having a big tongue, and did a home sleep test. My AHI was close to 60. I was prescribed a CPAP with a nose-only mask, and my AHI went to zero overnight. No issues whatsoever. Maybe try a different CPAP or mask combination if you only tried it with a mask that goes over the mouth.

Re: Ask HN: Can you share your experience with sleep apnea?

#14

Yes. To make a long story short, it was a lifestyle change that solved it for me. Basically my sleep apnea was due to irritation in my airways due to stomach acid leaking towards the throat at night, while laying down. That stomach acid was going up because of high levels of work stress and late evening meals, as well as unhealthy snacking (though I am a healthy and active individual, the effect was there). I now nev…

I tried intermittent fasting by not having dinner, and I noticed that my heartburn went away almost immediately. I stuck to it pretty much because of that. Not sure how it relates to my sleep apnea because I had already fixed it by then, but it is probably worth a try if CPAP didn't work.

Re: Ask HN: Can you share your experience with sleep apnea?

#16
post #9

A few further options you might try: 1. Inspire is an implant that electrically activates the muscles in your airway. You program it with a Bluetooth remote. It require that you have tried CPAP without success, but it works very well for some people. https://www.inspiresleep.com/ 2. Apnimed is developing pharmaceutical interventions for sleep apnea. They’re conducting clinical trials; you could try to get involved in…

I tried Inspire but it didn't work for me. My doctor said it's about 50:50 in terms of patients that it works for. CPAP works great for me. I also recently got a mandibular oral device which also works fine and is useful for situations where I don't want to lug a CPAP around (eg travel)

Re: Ask HN: Can you share your experience with sleep apnea?

#17
I am thin and not the typical profile for sleep apnea. I started waking up in the middle of the night with severe hand pain, needing to urinate (nocturia) and had a headache in the morning despite getting 8 plus hours. Doctor sent me to the sleep lab. Unrelated, I thought to myself, but submitted. The lab said the hand pain was a red herring, thought it was neck related, and gave me a home test. Results came back, mild sleep apnea (10 AHI, under 5 is considered normal). I was given not a lot of guidance, said to get a CPAP, which is the gold standard.

I was in a ton of pain, so I dutifully bought one and started monitoring my data using SleepyHead. Getting the right pressure was key, as was finding the right nasal pillow fit and making sure no mouth leaks. The first month was brutal, but my body started adjusting. The first night I slept well I woke up with a refreshing feeling I hadn't felt since grade school. That motivating me to keep going. I read sometime later that when you have an apnea, your vascular system constricts in the extremities and dilates going to the head to prioritize getting oxygen to the brain. Sure enough, that was what had been happening. My hand pain was the feeling of lack of oxygen or lactic acid build-up, I'm guessing. The headaches were from too much blood pressure going to the head (I've since found that a cold compress on the neck or a naproxen can help that if it occurs). The nocturia came from the fight or flight response when the adrenaline of apnea kicks in. All three symptoms went away when I started getting down to However. Though I grew to be used to the CPAP, I never liked it. It made a good night better but a bad night worse. I started having unrelated back pain which made it hard to sleep in certain positions with the headgear on. And during the summer my allergies made it near-impossible to get enough air (I found fluticasone to help though). On a whim I bought a snore-aid mouth appliance. It didn't work initially because it made my jaw hurt so much, so I stuck with CPAP and began using the mouth appliance with less mandibular advancement during only the last 3 or so hours of the night. Finally a work trip came up and I decided to rip off the band-aid. I took only the mouth appliance, and found I could tolerate the further advancement. It worked, no more apnea events, mind still clear in the morning, no hand pain etc. I waited a couple weeks, then packed away the CPAP. I had been on it for 3 1/2 years. I wish the sleep lab had mentioned that option for my condition.

Re: Ask HN: Can you share your experience with sleep apnea?

#19
Yes. My doctor suggested a choice between a CPAP machine to maintain a positive pressure of oxygen through a mask attached to a machine, and a plastic mouthpiece that would keep my lower jaw projecting forward. That cost $2000, and insurance refused to pay for it.

That worked well enough, but what worked better was exercising and losing weight. Exercising was not what achieved the weight loss, although it had myriad good effects. What made losing weight possible was eliminating sugar. In particular, eliminating all sugar not accompanied by fiber. Sugar in fruit is fine because (except in grapes!) fruit has plenty of fiber. Juice doesn't.

Actually having sleep apnea can itself interfere with losing weight. So, get treatment for that, then work on losing the weight.

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