Live data from Hacker News

Ask HN: Reading recommendations for understanding food allergies?

news.ycombinator.com

11–20 of 26 posts

Re: Ask HN: Reading recommendations for understanding food allergies?

#11
Not a doctor but same experience and took a scientific approach which at the end was just about removing food and having a clean home. I wrote a short comment about this before [1] but will expand here:

1/ You need to know the kind of reaction they have. Go to the allergist. If they are gastrointestinal or if they are respiratory or of another kind. The first type can be solved after one year, the second is more dangerous with risk of anaphylactic shock.

2/ The allergist will do a blood study and patch tests. If it is respiratory it will show specific immunoglobulin types. If it is gastrointestinal it is probable there will not be immune system reactions then it is about trial and error, incorporating one by one the top 8 allergenes within an interval of 15 days. Some reactions are delayed until 15 days. It is important in these cases to 100% isolate traces of food with specific crockery for the child including cleaning sponge, etc.

My first daughter was cured after the first year, the second one continue to have issues with some cheeses and "dulce de leche" [2] and rice. These produce hippus and some small behavior changes, nothing terrible.

[1] https://news.ycombinator.com/item?id=15082349

[2] https://es.wikipedia.org/wiki/Dulce_de_leche?wprov=sfla1

Re: Ask HN: Reading recommendations for understanding food allergies?

#12
post #6
post #3

Not reading recommendations, but here are a few keywords of topics that are directly connected to food allergies: - leaky gut - gut flora / gut microbiota / intestinal bacteria - autoimmune disease - food allergy connection - scd, gaps, paleo, autoimmune diets And some people whose online/offline content may be helpful regarding the topics above: - Mark Hyman - Joe Mercola - Natasha Campbell Mc-Bride While educating…

As a parent of a child with multiple life-threatening food allergies, I cannot stress enough the degree to which the references you've posted are actively harmful. The quackery promoted by some of the people you've mentioned can have real consequences for people who have anaphylactic reactions to foods.

As someone with two bowel resections (first at age 12) and both severe Crohn's and Colitis for over 20 years, I can say you're wrong. It's very surprising how much diet affects health. Very few members of the medical community have much knowledge of nutrition and a lot of the medical journal information is flat out misleading.

Re: Ask HN: Reading recommendations for understanding food allergies?

#13
I once talked to someone who suggested that allergies may be indicative of undiagnosed parasitic infections. I didn't understand the medical stuff well enough to remember it such that I could repeat it here. I'm just tossing that out as a suggested angle to read up on.

Best.

Re: Ask HN: Reading recommendations for understanding food allergies?

#14

Pathologist here, I use FDA-approved antibodies in my daily practice. I'm going to assume you're a hacker and you're looking for what I'll call "Haynes Manual" understanding. Any textbook on molecular biology or immunology would be a good start. Conversely, I would strongly advise avoiding anything from any internet personality with an opinion on this stuff. The medical part of the internet is extremely skewed becaus…

[dead]

Re: Ask HN: Reading recommendations for understanding food allergies?

#15

I once talked to someone who suggested that allergies may be indicative of undiagnosed parasitic infections. I didn't understand the medical stuff well enough to remember it such that I could repeat it here. I'm just tossing that out as a suggested angle to read up on. Best.

When I was looking into my own food "hypersensitivities" this was actually mentioned by the gastroenterologist, but I had an endoscopy and other tests, which ruled out that theory.

So could be an issue, but may not.

Re: Ask HN: Reading recommendations for understanding food allergies?

#16

I am not going to try to debate "gwn7". Please do your own research while seeing a Gastroenterologist or registered Dietitian. Specifically a specialist you are referred to from your primary care doctor. Do not go looking for a Naturopath or GAPS practitioner! Please also do look into blogs that have debunked the people mentioned in that comment. Please, please, please do not blindly follow the advice given by the co…

It's very surprising how much diet affects health. Very few members of the medical community have much knowledge of nutrition and a lot of the medical journal information is flat out misleading.

For example, I've had two bowel resections (first at age 12) and have been living with Crohn's and Colitis for over 20 years. Without those resources you've listed, I'd be stuck on monthly cyanocobalamin injections due to a terminal ileum resection. With those resources advice, I tried methylcobalamin and was able to absorb B12 orally. One less monthly injection for me.

I've also discovered a link between copper and angular cheilitis and many others. Most medical journals will point you in the direction of pharmaceuticals, which definitely have their place but also don't always work. I've been on many strong immunosuppressive medications most of my life and they do work.

Re: Ask HN: Reading recommendations for understanding food allergies?

#18
pre-note: the allergies are examples, as I'm not sure the specifics here.

The money you'd spend on just going to a specialist will far outclass what you are going to find online. They are able to isolate exactly what is causing the allergy and intolerance.

Personally, I don't think that food allergies are increasing so much as there is a wider understanding of allergies and intolerances (there is a difference). Conditions that were unclassified 20 years ago are now acknowledged as real conditions. Only a few years ago, people who would complain of being allergic to "hypo-allergenic" foods like bananas, plums, cherries, and so on were laughed out of the office and called hypochondriacs. Dust, pollen, and peanuts, and similar were classed as allergens. Today, the story is different. The relationship between seasonal allergies and food allergies is better understood. For example, you can be allergic to a certain tree, which only blooms in fall, and that tree will trigger a food allergy that only expresses itself during the fall. This doesn't mean you should start eating an allergen during the off-seasons (IMO).

I live with a lot of allergies and intolerances. My best advice is to simply stay away from what can make your daughters sick. Unfortunately, they will end up discovering allergies the hard way, and you can only support them by trying to recognize what is going to make them ill. If you open an orange and they are sneezing, stop buying and eating oranges. Everyone will have to make some sacrifices for them, but at the same time, learn to differentiate between what is okay and not okay to eat around them.

There is nothing more irritating than eating a piece of strawberry cake and apologizing to them for eating that in front of them. To them, you are eating poison, so it's no loss to them.

And FFS, please for all things lovely, don't ever ever ever sneak an allergen into their food to see what happens. That's incredibly rude, and yep, their friends and boyfriends are going to do this to them (ugh).

I will say that there are various reactions. For me, I know what I can and cannot eat. If I get something on accident, I'll simply toss up in about 15 minutes, which is much better than the reactions I used to get.

Please just listen to your doctor. Get the allergy shots, and get the epi-pen if needed.

I would also (lightly) advise that the issues with allergies is compounded because a lot of people don't understand nutrition at all. Adkins is good, bad, neutral? What? I'm nearing 40, have good general health, and look about 10 years younger than my age. I know of a few others with a similar range of allergies who are in amazing general health. A friend's relative plays professional sports and can eat maybe 10 things without getting ill. While it emotionally hurts to see someone who can't eat all the "healthy" stuff, just remember that it is poison to their body, and you just have to work with what you have.

Hope that helps.

Re: Ask HN: Reading recommendations for understanding food allergies?

#19
To the extent that you mean IgE allergies, ordinary medical care is rather sound; but where non-IgE sensitivities-you-can-still-die-from are concerned, practitioner knowledge is much thinner on the ground,and the science far more recent. You won't find much in textbooks, just journal articles. Look into MCAS (mast cell activation syndrome) and Dr. Afrin's book "Never bet against Occam" is the best starting point for that; although one point of view. Note that some usually-missed-no-matter-how-many-doctors-you-see diagnoses (esp in the young) such as Anylosing Spondylitis and Ehlers-Danlos Syndrome involve such sensitivities. Whether you children have these are not, they'll almost always be quick to reassure you they don't. Extraordinarily severe underdiagnosis (90%) in both cases.

Re: Ask HN: Reading recommendations for understanding food allergies?

#20
post #11

Not a doctor but same experience and took a scientific approach which at the end was just about removing food and having a clean home. I wrote a short comment about this before [1] but will expand here: 1/ You need to know the kind of reaction they have. Go to the allergist. If they are gastrointestinal or if they are respiratory or of another kind. The first type can be solved after one year, the second is more dang…

This is true for IgE allergies, but many (sometimes life-threatening) mast cell reactions don't involve IgE and are very difficult to diagnose, since tryptase levels are very hard to measure properly, and the specific variant (alpha) of tryptase is relevant, and that pretty much requires a genetic study only available from one source right now.

It is always good to find triggers - but these can be very numerous (often secondary or transient) in MCAS (mast cell activation syndrome.) Tough job, if MCAS is at work.

Post reply on HN