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Ask HN: Are you a programmer with Parkinson's?

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Re: Ask HN: Are you a programmer with Parkinson's?

#11
post #9

I suggest you to watch this talk on this years ng-conf. https://youtu.be/mAjjI35RcUE?t=11949

"This video contains content from NBC Universal, who has blocked it in your country on copyright grounds. Sorry about that." -- in the US.

Well there is like 30 seconds from House TV series, so I guess they can claim the whole video (9:57:33) be blocked in US.

Re: Ask HN: Are you a programmer with Parkinson's?

#12
I was diagnosed about 5 years ago. Although programming isn't my primary job anymore, I still do it occasionally and did so for at least a couple of years acceptably. The main thing I noticed is that the ability to focus on complex logic or chains of events went seriously downhill so I had to do a better job of sketching out my algorithm before I started to code and making lists and diagrams for myself. I could no longer hold it all in my mind. Medication (Sinemet) does help somewhat with the ability to focus. Also finding times each day when you are clear from distractions -- this can be accomplished by setting aside time to deal with the distractions and time when you will not deal with them. I find I can focus for maybe an hour at most now, and then I need a break. This is manageable when you know about it and plan around it. As I've moved to more managerial type tasks, it actually works out ok. If you intend to stick to strict programming, I advocate being as organized as possible. I used to have an excellent memory and it's just not there anymore, but I mostly do just fine because I've learned to be diligent about creating a task for myself for everything I need to do and not relying on myself to remember it. Good luck!

Re: Ask HN: Are you a programmer with Parkinson's?

#14
Having been diagnosed with Parkinson's 15 years ago at age 36, I today still have no mental limitations and I can concentrate the same way as I could before the diagnosis (as has been tested several times by neurologists). Among other tasks, I am still programming and leading development teams. It seems to me that programming is the ideal job for someone with Parkinson's since one can do it independent of the fact that some motoric skills such as walking are reduced or one's voice is not so crystal clear anymore. I learned from my own experience that an illness or handicap does not mean to drop out of the professional world, in contrary I made very good experiences with ill/handicapped colleagues and employees since they are usually very dedicated. The most important thing from my view is to address any and all issues related to such a condition in an open, respectful manner so that your ill colleague does not feel pressed to hide problems and ask for help concerning things like commuting to work etc. (sorry for my inelegant English, it is not my mother tongue).

Re: Ask HN: Are you a programmer with Parkinson's?

#15

Having been diagnosed with Parkinson's 15 years ago at age 36, I today still have no mental limitations and I can concentrate the same way as I could before the diagnosis (as has been tested several times by neurologists). Among other tasks, I am still programming and leading development teams. It seems to me that programming is the ideal job for someone with Parkinson's since one can do it independent of the fact th…

Thank you, your experience is very encouraging.

Re: Ask HN: Are you a programmer with Parkinson's?

#16
post #10

One thing that you guys might be interested in: there has been some limited investigation into tandem cycling as a therapy for Parkinson's, though it's somewhat anecdotal. What research there is suggests that it's about being forced to cycle at 80-to-90 rpm at a lower resistance which still keeps your heart rate up, as opposed to cycling voluntarily at whatever pace you want while being coached to keep your heart rat…

Thank you! Thank you for linking the study.

Re: Ask HN: Are you a programmer with Parkinson's?

#17

I was diagnosed about 5 years ago. Although programming isn't my primary job anymore, I still do it occasionally and did so for at least a couple of years acceptably. The main thing I noticed is that the ability to focus on complex logic or chains of events went seriously downhill so I had to do a better job of sketching out my algorithm before I started to code and making lists and diagrams for myself. I could no lo…

Thank you for sharing your experience. It is encouraging to read about others in our field coping, and coping well with Parkinson's. Moving to more managerial type positions does seem like a good idea.

Re: Ask HN: Are you a programmer with Parkinson's?

#18
post #16
post #10

One thing that you guys might be interested in: there has been some limited investigation into tandem cycling as a therapy for Parkinson's, though it's somewhat anecdotal. What research there is suggests that it's about being forced to cycle at 80-to-90 rpm at a lower resistance which still keeps your heart rate up, as opposed to cycling voluntarily at whatever pace you want while being coached to keep your heart rat…

Thank you! Thank you for linking the study.

No problem; I'm glad it was helpful.

Re: Ask HN: Are you a programmer with Parkinson's?

#19
I hate typing, so here's a short reply. I type less every year. 6 years from diagnosis. I seek work that is more looking at stuff to find the fault, and less data entry. Voice recognition is fine for dictation, but sux for editing code. Riding my bike hard every day makes a HUGE impact on my typing speed, so a decent bike commute is mandatory for me. Glad I'm in the software biz, and not a musician or surgeon. Never thought I'd say that!!!
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