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I made tinnitus my friend, then it disappeared [video]

mynoise.net

11–20 of 179 posts

Re: I made tinnitus my friend, then it disappeared [video]

#11
of course even reading a thread on tinnitus makes mine worse. The mere fact of paying attention to it makes it worse, so I have a hard time seeing how a drug is going to help much. I do wish there was something.

Ostensibly mine is from high frequency hearing loss, which I absolutely have, but I now wear hearing aids and it has no measurable impact from my point of view.

I take comfort in that I can go long periods of time without noticing it, and I know that even though I'm focused on it now and it's loud, it will slowly drift to the background and below conscious notice before too long.

I certainly don't befriend it, but I when I notice it, I acknowledge that I notice it and move on with whatever I'm doing. Eventually I'll notice again, days or weeks later and realize I hadn't noticed it at all in the intervening time. So I just relax and move on.

Re: I made tinnitus my friend, then it disappeared [video]

#12
It's almost certainly my own damn fault I have it, but after at least 35-40 years dealing with it,tinitus sure as hell isn't my friend.

Mine is high pitched, and varries in intensity but has gotten worse lately. Sometimes it makes jus existing down right hard, but usually it's only moderately annoying and I can mostly ignore it.

I've tried an assortment of sound based methods to mask it or train my brain to tune it out, but nothing has worked more than fleetingly.

The only thing that reliably gives me a break is if I can really focus on something. Music (passive or active), cooking, and programming are the most reliable, but sometimes reading, gaming, or good conversation works. Usually, though, everything is done with a constant backing track of flyback transformer whine.

Wear hearing protection, kids, or you may well live to regret it!

Re: I made tinnitus my friend, then it disappeared [video]

#14

Yeah, that's nice and all, but people suffering from tinnitus will tend to get downright angry when you tell them: "Just change your attitude to it." There's nobody with tinnitus who hasn't heard it 100x already. And it's not that easy. It's unfortunate and surprising that there's still no effective drug, though lidocaine does, in fact, work. (Very temporarily, sadly.) And time does help, at least sometimes. Over the…

There's surgery...

Re: I made tinnitus my friend, then it disappeared [video]

#15
Over the years I have seen a few threads on tinnitus. I have it very mildly and doesn’t bother me much. On the other hand I have had “floaters” in my eyes since I was a teenager (probably just when I noticed them). Until I saw a doc I thought I was going blind but apparently they run in my family. They are like visual tinnitus and my god do they drive me crazy. I find wearing sunglasses helps me ignore them but they can be brutal. I am a big skier and in flat light they drive me bonkers. Not sure I have seen these discussed here but maybe I missed it.

Re: I made tinnitus my friend, then it disappeared [video]

#16
post #14

Yeah, that's nice and all, but people suffering from tinnitus will tend to get downright angry when you tell them: "Just change your attitude to it." There's nobody with tinnitus who hasn't heard it 100x already. And it's not that easy. It's unfortunate and surprising that there's still no effective drug, though lidocaine does, in fact, work. (Very temporarily, sadly.) And time does help, at least sometimes. Over the…

There's surgery...

IIRC it's only for a specific, rare variant, though?

There's also that surgery where they sever your auditory nerve and render you deaf. Some have done this in an extreme last-ditch effort to cure their tinnitus. Sadly, it doesn't always work -- many of those who tried became deaf and yet remained stuck with tinnitus.

Re: I made tinnitus my friend, then it disappeared [video]

#17

It's almost certainly my own damn fault I have it, but after at least 35-40 years dealing with it,tinitus sure as hell isn't my friend. Mine is high pitched, and varries in intensity but has gotten worse lately. Sometimes it makes jus existing down right hard, but usually it's only moderately annoying and I can mostly ignore it. I've tried an assortment of sound based methods to mask it or train my brain to tune it o…

I remember about twenty years ago reading a method on a forum somewhere for dealing with tinnitus to create temporary relief. Many folks claimed to experience relief from trying it. Maybe it will help you?

It was text back then but nowadays there are videos. Here's an example: https://www.youtube.com/shorts/YyT9ZwWy5Jc

Re: I made tinnitus my friend, then it disappeared [video]

#19

It's almost certainly my own damn fault I have it, but after at least 35-40 years dealing with it,tinitus sure as hell isn't my friend. Mine is high pitched, and varries in intensity but has gotten worse lately. Sometimes it makes jus existing down right hard, but usually it's only moderately annoying and I can mostly ignore it. I've tried an assortment of sound based methods to mask it or train my brain to tune it o…

>tinitus sure as hell isn't my friend.

what the author is advocating for "befriending tinnitus" is a well established form of therapy (Acceptance and Commitment/ACT), it's generally very effective because avoidance or compensatory behavior ("trying to make the tinnitus go away / distract myself") is teaching the brain that tinnitus is a problem and is only going to increase the kind of alertness that leads people to focus on their tinnitus. It's the same way with insomnia, people who try to produce sleep efforts tend to worsen their insomnia, you need to befriend being awake.

There's a big psychological component to tinnitus that sustains itself because people view tinnitus as a problem, that's often larger than the physical impairment.

Re: I made tinnitus my friend, then it disappeared [video]

#20
I have had occasional tinnitus, and once it lasted for a few months and then went away. Sometimes it appears suddenly, and I've taken vitamin B12 and magnesium and it goes away in a few hours. Vitamin D might also help according to some studies, but in my case I think it might make it worse. Not sure if placebo or not.
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