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thenerdhead

HN member
Joined
Sat, Jan 01, 2022, 6:41 PM UTC
HN karma
4,472
Public activity
1,546 items

About thenerdhead

https://fnih.org/patient-engagement/patient-voices-fnih/long-covid-struggle-inspires-urgency/

Recent public activity

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    Comment #48900534

    Very cool website! That sounds like a good next step, thank you so much!

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    Comment #48882072

    no, vaccines were not available when I got covid and developed long covid months later.

  7. story
    Show HN: TrialPilot – clinical trials from your phone, built by a patient

    I have Long COVID, five years and counting. I sit on the NIH RECOVER and RECOVER-TLC working groups where I watched how research on invisible illness actually gets done and who get…

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    Comment #48880979

    thats strange as I thought Germany is the one investing over the next decade in these conditions?

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    Comment #48880653

    having posted on this topic for years, your comment is the first I’ve seen come to this rational conclusion. usually people double down on their original perspective

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    Comment #48880441

    strongest evidence so far in gut and immune cells for living organisms. They did find it in the brain of one patient when doing an unrelated procedure at the NIH. That could be due…

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    Comment #48880359

    they’ve done 15 days all null and the 25 day one was null but has some unique labs they tested but haven’t posted yet. Paxlovid does something to antiviral genes and shows there’s …

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    Comment #48880325

    evidence says yes, but bacteria and other antigens are being studied. ME/CFS shows antigen persistence like long covid has clearly shown. https://www.nature.com/articles/s41467-024…

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    Comment #48877814

    is a small proof of concept study not a study anymore? gastric biopsies aren’t exactly easy to obtain at scale.

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    Comment #48877751

    they are pretty well understood now with growing evidence of viral persistence in the gut and immune cells, and immune dysfunction causing autoantibodies. they are also distinct fr…

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    Comment #48877697

    severity is only one factor in developing long covid. https://www.thelancet.com/journals/laninf/article/PIIS1473-3...

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    Comment #48877673

    not quite. A grab bag of biomarkers being validated in research labs across the USA though

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    Comment #48877669

    small study yes, meaningless no

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    Comment #45502310

    what we’re seeing now is that the immune system can go into overdrive, where certain immune cells trigger sepsis-like illness, sometimes in milder or chronic ways. long covid and r…

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    Comment #44819340

    Have you heard of Novavax or any of the intranasal vaccines in late trials?